[-] malvidx 3 points 1 year ago

Thanks! I've let my physical therapist know what's going on and hopefully she can help!

[-] malvidx 2 points 1 year ago* (last edited 1 year ago)

Thanks! It really is. It feels (dare I say) validiating. I've spent so many years being told "we don't know" and one pain doctor even called me drug seeking. So I'm SO happy to start hopefully getting relief.

[-] malvidx 3 points 1 year ago* (last edited 1 year ago)

Thanks sorry it's taken me awhile to respond. Its been arough few days. I can relate a lot to your post. My doctors have all said structuraly you're fine we don't understand! I've been struggling to do anything except lay in bed. I have a home health aide that comes 10 hours a day 7 days a week so that's amazingly helpful. I hope you get some relief too.

6
chronic pain and CRPS (self.disability)
submitted 1 year ago by malvidx to c/disability@beehaw.org

I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I've been having severe pain in that leg and they can't figure out why. Finally it looks like I may have CRPS. I have every single symptom. It feels really good to finally have a name for the hell I've been going through for so long. I just needed to write it out. I'm basically home/bed bound except for medical appointments. I'm just tired.

[-] malvidx 5 points 1 year ago

I get it. No pressure here. Just solidarity.

[-] malvidx 1 points 1 year ago

I get it. Sorry. The main reason for my question is it kept saying pending. I was confused.

[-] malvidx 2 points 1 year ago

I get that! Been struggling here as well.

[-] malvidx 2 points 1 year ago

Cool thanks! Also I went from 'pending' to 'joined' finally!

[-] malvidx 6 points 1 year ago

Gotcha thanks! It seems like a good community from what I've read.

9
submitted 1 year ago by malvidx to c/disability@beehaw.org

It says my approval is still pending and I'm not seeing new posts?

[-] malvidx 2 points 1 year ago

I finally de-googled my pixel 6a about two weeks ago and am using GrapheneOS. I absolutely love it. Best thing I've done to a phone.

[-] malvidx 2 points 1 year ago

Hi! I'm a 45 year old amputee. Had an accident in 2015 and after a buttload of surgeries lost my leg. Had a traumatic knee replacement this past December and am in constant pain. Getting a morphine pump soon. I also have a paralyzed neurogenic bladder from my accident. I have an awesome cat and partner.

3
anyone got a pain pump? (self.disability)
submitted 1 year ago by malvidx to c/disability@beehaw.org

I was approved for a morphine pain pump. Went through the psych eval etc. I'm waiting to be scheduled for my trial. Has anyone had one and what's your experience? Thanks!

[-] malvidx 1 points 1 year ago

You didn't know there were other trans disabled people? I'm ftm and disabled (amputee, wheelchair user, and a host of other things). We are out there!

9
atticus (lemmy.sdf.org)
submitted 1 year ago by malvidx to c/cats
[-] malvidx 1 points 1 year ago

Thank you so much! I think I get it. Hahah. I wasn't sure which community to post to.

21
Glad to be here! (self.sdfpubnix)
submitted 1 year ago by malvidx to c/sdfpubnix

Hey all! I was a casual reddit user and wanted to explore a different route. I'm just your typical geek. I recently de-googled my pixel 6a because I was bored. I'm an avid Linux user. I've had a sdf account for quite some time and am getting back to using it more (also I paid for an upgrade but it never happened. What's up with that?) Anyway good to be here!

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malvidx

joined 1 year ago