submitted 1 year ago by malvidx to c/disability@beehaw.org

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I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I've been having severe pain in that leg and they can't figure out why. Finally it looks like I may have CRPS. I have every single symptom. It feels really good to finally have a name for the hell I've been going through for so long. I just needed to write it out. I'm basically home/bed bound except for medical appointments. I'm just tired.

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[-] Nugget@beehaw.org 2 points 1 year ago

Having a label for your condition is a gratifying and important step, congratulations on finally figuring that out. Once I had a label for the source of my pain and problems, I felt I crossed a mental threshold where I could put it in a box and contain it. It was no longer an overwhelming question mark floating around. I hope this is a first step in many more improvements for you!

[-] malvidx 2 points 1 year ago* (last edited 1 year ago)

Thanks! It really is. It feels (dare I say) validiating. I've spent so many years being told "we don't know" and one pain doctor even called me drug seeking. So I'm SO happy to start hopefully getting relief.

this post was submitted on 13 Jul 2023

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