I'm going through a very similar thing except with blood clots and anticoagulants. I was in the hospital for 3 days for a pulmonary embolism, but the docs couldn't figure out why. Instead, they just put me on the blood thinners for life.

This is a big bummer because I have a pretty active lifestyle (cycling, caving, scuba) and being on the meds means I can't feel safe doing these things anymore.

I'm trying right now to talk to different doctors and see if there's a way to safely stop the meds but I'm fighting against their flow charts that simply say this is the reality from now on.