this post was submitted on 28 Dec 2025
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Privacy
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The whole idea behind having it hosted is to be able to record stuff when not at home. For example he had a seizure in the bathroom of a gas station the other day. I'd like to be able to use an app on my phone to generate a json file and send it to a server where it's recorded in a dB.
The big thing I want is to be able to go to a doctor's appointment and have a list of all seizures with applicable details. Like "in the last 6 months he had 84 seizures but you added medication X 4 months ago and as you can see that resulted in a 80% reduction in seizures on a weekly basis" or "he had 45 seizures in 3 months but they mostly happen just after lunch, can we adjust the medication schedule to account for lunch time?"
I don't want it locally on my phone completely because I want his mother(my girlfriend) to also be able to record incidents if I'm not around and have everything sync to one source of truth. Yeah I guess it's possible to record on my phone, record on her phone and then do some sort of merge to generate the full report but that seems really messy.