this post was submitted on 28 Dec 2025
12 points (100.0% liked)

Privacy

4613 readers
854 users here now

Welcome! This is a community for all those who are interested in protecting their privacy.

Rules

PS: Don't be a smartass and try to game the system, we'll know if you're breaking the rules when we see it!

  1. Be civil and no prejudice
  2. Don't promote big-tech software
  3. No apathy and defeatism for privacy (i.e. "They already have my data, why bother?")
  4. No reposting of news that was already posted
  5. No crypto, blockchain, NFTs
  6. No Xitter links (if absolutely necessary, use xcancel)

Related communities:

Some of these are only vaguely related, but great communities.

founded 1 year ago
MODERATORS
 

So I've been working a program, exact details don't matter, which stores information in a database(either locally hosted or privately hosted by user). Basically it's to store a history of seizures and medication, so you can give it to a doctor and see something like "well most seizures occur in morning so let's give medication at 6am instead of 8am" or something like that. To do that requires two "accounts" one for caregiver and one for patient(idea is for parents of a child with medical issues). It requires accounts to see like "dad gave medicine at 7pm" or "mom saw child 1 have a seizure at 230pm". These are basically just names stored in the local/private database, I will not no them or track them.

I don't want to deal with hippa or be responsible for medical data so I specifically don't want to host the data. Assuming you had a use for this and the ability host the database would you be turned off by the requirements of "accounts" even if you completely controlled them?

you are viewing a single comment's thread
view the rest of the comments
[–] vrek@programming.dev 1 points 10 hours ago

The whole idea behind having it hosted is to be able to record stuff when not at home. For example he had a seizure in the bathroom of a gas station the other day. I'd like to be able to use an app on my phone to generate a json file and send it to a server where it's recorded in a dB.

The big thing I want is to be able to go to a doctor's appointment and have a list of all seizures with applicable details. Like "in the last 6 months he had 84 seizures but you added medication X 4 months ago and as you can see that resulted in a 80% reduction in seizures on a weekly basis" or "he had 45 seizures in 3 months but they mostly happen just after lunch, can we adjust the medication schedule to account for lunch time?"

I don't want it locally on my phone completely because I want his mother(my girlfriend) to also be able to record incidents if I'm not around and have everything sync to one source of truth. Yeah I guess it's possible to record on my phone, record on her phone and then do some sort of merge to generate the full report but that seems really messy.