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submitted 1 year ago* (last edited 1 year ago) by emma@beehaw.org to c/disability@beehaw.org

The weight of living with chronic illness is getting to me again. Could use some empathy from others who understand and won't pressure me to explain what's going on (a dozen small triggers maybe), turn it into their problems, or tell me it will get better or the worst, "Stay strong."

We've all been here so here's a place where we can sit with each other.

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[-] emma@beehaw.org 4 points 1 year ago

30+ years into coping with these things, my most effective and main strategies are good sleep practices; nutritional (making sure I eat regularly and healthily, supplements because my body doesn't process enough from food, and minimizing things like sugar and caffeine); trying to minimize stresses (some are easy, like caffeine, others not, like the state of world and society); and recognising when i need radical rest. As in really not doing much of anything, which is boring AF.

[-] DreamyRin@beehaw.org 2 points 1 year ago

ayyy 30+ year old club.

I've started to get better about eating things that are better for me, but it's been a struggle due to texture issues. and I definitely relate on minimizing stress being easier in some cases and harder in others.

I have a really hard time with radical rest (that's the first time I've seen it called that, too) both because it's boring and because I feel like I have to keep doing something (anything) to feel like my day was productive. it clashes a lot with the times I can't get myself to function.

this post was submitted on 11 Jul 2023
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