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this post was submitted on 05 May 2024
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wow it's almost like it's a shitty fucking system and you're very much a part of it.
from his linkedin:
Maybe we shouldn't make healthcare decisions while keeping our eyes on the bottom line, wow
For the persons interested the detailed cost vs clinical benefit for the Zolgensma done by the French national social security is public.
The conclusion is that the clinical benefits of this treatment are substantial for type1&2 so it will be reimbursed by the national social security. For the patient with the type 3 disease other treatments will be favored.
English summary