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this post was submitted on 30 May 2024
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As a parent of 2 children on the spectrum I need to give you a well thought out "fuck you" in response.
My experience online is a lot of you "champions" for autism are only speaking for yourselves and those like you, which is to say the ones that have some means of independence be it verbally, physically or emotionally. I have one son like that. He's Asperger's. He will have challenges, but he will live a long and productive life with all the proper tools. My other son is your "traditional" autistic. He is thankfully verbal but at this point there is no plan for him to be independent ever. As parents we hope for the best and take every day at a time.
To assume that our opinions and decisions are derived as "making about ourselves" is part of the problem. Everything I have done since his birth has been to NOT make it about myself.
The last thing I need is people like you punching down because you can't look past your own goddamn nose.
he's not talking about parents of autistic children. he's talking about parents of autistic children who make that their main personality trait, walking around referring to themselves as "autistic moms", intentionally using confusing language so you can't tell if they're autistic, or if their child is autistic. sort of like Munchausen by Proxy but you don't have to fake it
Oh yeah those parents who make it their identity are weird AF.
Have you considered working memory training as a method for helping your son become more functional?
We've just started him on strattera and seeing some success. The problem isn't so much the autism but how the ADHD manifests. If this makes sense it's like about working memory and more about modeling activities. Because he has issues with muscle tone he lacks a lot of the core abilities many of us take for granted like being able to do something as simple as a thumbs up. Thumbs up took a year.