ME/CFS

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A community for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS). ME

Since Lemmy is small, this community also serves as a hub for common comorbidities of ME/CFS. Long COVID (Post COVID), POTS (Postural Orthostatic Tachycardia Syndrome), OI (orthostatic intolerance), MCAS (mast cell activation syndrome), and more!

For those who want an even more general community, check out !chronicillness@lemmy.world

Also please DM me I need to add some mods!

Rules: Instance Rules, No Ableism + No quackery or denialism. Empathy first, is a must to participate. No unsolicited advice.

founded 5 months ago

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FundMECFSResearch@lemmy.blahaj.zone

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal (theconversation.com)

submitted 4 months ago by FundMECFSResearch@lemmy.blahaj.zone to c/myalgicencephalomyelitis@lemmy.blahaj.zone

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[–] Samvega@lemmy.blahaj.zone 2 points 4 months ago (1 children)

I wouldn’t suggest anyone who’s still struggling with accepting their ME to read this article because it’s very focused on the bleak aspects.

Sadly, I'm not sure that human society will change without challenging the bleak aspects. This is a lot to ask for an individual.

[–] Sop@lemmy.blahaj.zone 4 points 4 months ago

Which is why people without ME should read it. I don’t know if you know anything about ME (if not then why haven’t you read the article?) but even reading an article like that can literally make someone with ME sick for a day or a week because of the emotional energy it costs to process it.