17
submitted 7 months ago* (last edited 7 months ago) by nichtsowichtig@feddit.de to c/autism@lemmy.world

CW: Post discusses ABA and possibly Trauma, internalized ableism

Hello there! I'm currently researching the issue of ABA. I'm reading a lot about the criticisms, but most of the resources I found so far are (likely) made by level 1 autistics. As level 2 and level 3 autistics are not as well represented within autism self-advocacy, I would like to understand their position better on the topic. A usual defense for ABA is that it can help high-support-needs autistics to learn important skills, but I would like to read about that from an autistic perspective.

So if there are resources on the subject you can recommend, I'll be grateful! thank you

edit: I'm updating because users in this thread changed my view on this issue. I've been caught up in functioning label, which at the end of the day "levels" of autism still are. Here is what changed my mind:

Those needs you are looking for in an autistic person are completely and utterly irrelevant to you as a reader of their experience, and as far as you’re concerned any or all of the people who have already written about their experience of ABA fit in to your narrow and ignorant category, they just didn’t mention it because again - it isn’t fucking relevant.

There is no reason for me to specifically look for "level 2 or 3" autistics since their experiences are valid, regardless of them disclosing their support needs. It is ableist to expect them to disclose to me how "disabled" they are in order for me to validate their experience. Thanks @DessertStorms@kbin.social and @Ransom@lemmy.ca for helping me understand this. So in a way I found the answers I was looking for, and now I have some thinking to do

you are viewing a single comment's thread
view the rest of the comments
[-] nichtsowichtig@feddit.de 2 points 7 months ago

thanks for the links. To clarify, I oppose "functioning labels" like "severe" or "mild" autism. However, I think it is important to say that some autistics feel more disabled by their autism than others. Support need vary, and there should be a way to express that. If you have another term that is better, I'm all open to hear that! Finding good terms isn't always easy. Doesn't mean any one is better than the other. I agree with you insofar that any kind of "ranking" - as you say, is very misleading. I am usually called "mildly autistic" when I disclose my autism. Which is not how I experience it. I'd personally be more comfortable with being called a high masking autistic, as it doesn't invalidate my experience as much. Again, I am open for better words here. What I read about people who identify as level 2 or 3 autistics is that it is important to them to make some distinction, as their experience is quite different from people with lower support needs.

You not wanting to listen to them, or not considering them “enough” to satisfy whatever need it is you have (which I genuinely don’t understand), is a you problem.

You misunderstand me here. I precisely want to listen to them. What I am looking for is perspectives from people who dealt with more impairing issues (eg problems getting dressed, basic hygiene, trouble to communicate basic needs etc). I haven't seen the perspectives from these particular people.

[-] DessertStorms@kbin.social 3 points 7 months ago

I think it is important to say that some autistics feel more disabled by their autism than others. Support need vary, and there should be a way to express that. If you have another term that is better, I’m all open to hear that!

You don't need terms. Autistic people are as individual as everyone else, and you have zero need to know an autistic persons' individual needs. If you need to discuss your own needs with a healthcare professional, you go ahead and do that without placing yourself on a scale in comparison to others.

Did you actually read any of the links, or just thank me for them?

Either way, here are a couple of others you could probably use:

https://www.neurodiverging.com/what-is-internalized-ableism-neurodivergent-people-need-to-know/

https://www.autisticparentsuk.org/post/overcoming-internalised-ableism

If you really want to insist on ranking yourself, no one is going to stop you, but you don't get to rank others, nor to pretend that ranking yourself is completely benign and not tied in to ableism, internalised or otherwise.

As for the last part - I didn't misunderstand you at all. Those needs you are looking for in an autistic person are completely and utterly irrelevant to you as a reader of their experience, and as far as you're concerned any or all of the people who have already written about their experience of ABA fit in to your narrow and ignorant category, they just didn't mention it because again - it isn't fucking relevant.

[-] nichtsowichtig@feddit.de 2 points 7 months ago

you make good points. Thanks for sharing your thoughts with me.

[-] Ransom@lemmy.ca 3 points 7 months ago

perspectives from people who dealt with more impairing issues (eg problems getting dressed, basic hygiene, trouble to communicate basic needs etc)

So those are all me. ABA still sucks. Im okay with admitting that, but I would think that you’d have to be pretty vulnerable to share that info, and not everyone is there. Maybe you have received perspectives from people with those issues who have chosen to not communicate those aspects of their selves.

[-] nichtsowichtig@feddit.de 2 points 7 months ago

Im okay with admitting that, but I would think that you’d have to be pretty vulnerable to share that info

you are right. It is inconsiderate of me to expect people to disclose vulnerabilities in order to have their perspectives validated. I wouldn't want to be treated that way either.

[-] DessertStorms@kbin.social 1 points 7 months ago* (last edited 7 months ago)

Right? It's like this person is looking for some messed up twist on inspiration porn/voyeuristic experience where they need to read about how hard a person might find to wipe their ass before they'll consider their experience relevant, it's such bizarre, and ableist, gatekeeping..

[-] nichtsowichtig@feddit.de 2 points 7 months ago

ouch, that hurts. But point taken.

this post was submitted on 31 Jan 2024
17 points (74.3% liked)

Autism

6556 readers
15 users here now

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values

  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love

Rules

  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.

Encouraged

  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our community's values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.

.

Helpful Resources

founded 1 year ago
MODERATORS