disabled
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
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Let's kick back and have fun!
My landlady has her daughter, SIL and kids visiting. I really think the daughter is the most spoilt and unpleasant person imaginible. Despite being asked not to spray scented shit in the house to avoid giving me a migraine, she let her 12 year old son douse himself in body spray all over the house. The house was filled with it. I've been unwell all night. My new migraine meds mean the migraine wasn't as bad as it would have been otherwise, but I still feel awful. I could write a book about how horrid the daughter is. Every time she comes, she spends a fortune filling the fridge with food and then throws most of it away. If I ask for some, she rudely refuses and throws it away instead of letting me have any.
Pegasos got back to me and said if I wait a few years to show a continued desire for assisted suicide and bring a friend along, they might consider me in the future. But I don't have any friends now and being virtually housebound, I'm unlikely to make any. Honestly I've gotten so desperate I even considered trying to find someone to marry me to become my next of kin and take me sto Switzerland but who on earth would agree to that? Maybe i should make a mutual aid post about it.
im tired of constantly feeling like im pathetic for not being able to do as much as i did before. as though "as much as i did before" didn't lead to really bad burn out that stopped me from being able to function
maybe i will actually try to do nothing WITHOUT feeling guilty this week
Society makes us feel pathetic for not being able to do as much as other people. But actually, I'd say we try even harder than healthy people. Just basic every day things are so much more difficult and more effort if you're disabled.
I think I may have ADHD but talking about it with therapist hasn't been much help. Rehash of focus harder , do more exercise, check your diet . paying attention and not stimming for even a minute is hard even with those changes.
"just do precisely what your condition makes impossible. that'll be $200"
your therapist sucks and is trying to gaslight you out of having symptoms. would highly recommend getting a new therapist who specializes in that sort of thing, bc constant invalidation from an authority figure isn't good for you!!
Frustrating since other mh professionals recommend the same things 
yea... a lot of therapists are trained in cbt, which operates under the assumption your problems aren't real problems. so if your problems ARE real problems, they end up just gaslighting/invalidating you. it sucks! but it's a product of capitalism just wanting everyone to be a good worker drone, so idk what i expected
I moved!!!! I was in a pretty bad rut for a while, and I haven't seen any doctors for anything for 4.5 years but I signed up for a local clinic, dentist, and psychiatrist all at once this week! I hope It feels like I'm free-falling by trusting anyone but myself with my mental health, but hopefully it wont blow up in my face this time around.
Congrats! That's a lot of progress, hope it continues in the right direction for you.
Happy "Disability Independence Day", fellow 'muricans.
35 years ago today they passed the Americans with Disabilities Act (ADA) which prohibits discrimination on the basis of disability in both private and state government sectors. Idk if it's worth any praise at this point, but at least it exists, I guess. We still have a long, long way to go to actually provide for our disabled population in this country.
seriously though...
Well, I've been feeling more tired than usual (a side effect of my new migraine med which I decided to take after all) but I thought I'd report on my assisted suicide plans. They're not going well. There are 6 suicide clinics in Switzerland. Two don't accept foreigners. One doesn't give discounts. One isn't accepting new members. So that leaves two - dignitas and pegasos. I'm still going through the process with dignitas but i thought I'd also try pegasos as a backup. I just heard back from them and they said given my "relatively young age," they would require additional documentation from me, including a notarised letter from family members saying they support my decision and they'd have to come with me. I don't really have any family, I mean I have some cousins who live hundreds of miles away who I haven't seen in years. They don't care about me at all, they never check to see if I'm alright or need anything. You can technically get 14 years in prison in the UK for assisting someone to commit suicide, there is no way these cousins will drop everything, abandon their kids, travel hundreds of miles, spend loads of money and risk prison to help me do this. So pegasos is off the table. That only leaves dignitas but I know they are also keen on family involvement. It doesn't look like it's going to happen for me but I'll keep trying with dignitas until i get a definite no anyway.
I'm sorry to hear that it's all been dead ends. Seems dumb to require family, who you basically don't even know anymore, to vouch for any kind of procedure. Especially when they may as well be strangers. Hope the new med turns out beneficial.
Might have a herniated disc and can't move without pain. I'll be on the floor if you need me.
Shit! Can you call an ambulance?
No, it's one of those things where I'm pretty much just stuck lying down for 4-5 days on otc anti-inflammatory meds. It's happened before, they think two lower discs are impacted/pinched together and every now and again it flares up. Also, I can't afford a doctor right now, unfortunately, so I'm just doing what I've been recommended before. An ambulance costs between $2-5k, and the shitty insurance I have wouldn't cover all the x-rays or the doc visit, it'd probably be another $3k to get checked out. I'm doing better today though! I can stand upright and even move around a bit so I'm hopeful that resting will be enough for now.
Oh no love 
On top of everything else that's going on, I seem to have caught a cold/cough/sore throat. I want uppies 
Oh no... Do take care love
Sorry to hear that. Maybe get a covid check just in case. 
Thank you
I don't even know if we still can get tests here, otherwise I'd have bought one today. I'll see what I can do.
May I join you?
I need to join too, if I may
I just finished a course of antibiotics for my latest foot infection 2 days ago. It was seeming OK. Now the pain is back, I think it's infected again already and I don't want any more antibiotics, the last ones made me nauseated and gave me constant diarrhoea.
And I'm still struggling with my thyroxine issues, I'm so tired it's a struggle to stay awake or prepare food or anything. I was hoping someone would send me a justeat gift card so i could just order preprepared food until I have a bit more energy but my request is going unanswered. I guess I can't complain, there are a lot of people worse off than me needing help. It's such a sick world we live in where the most desperate people in the world have to compete with each other for food. It might as well be the Hunger Games at this point.
It's ok to vent, you have a safe space here. There's no use pretending everything is okay, but at least we can share our thoughts and feelings in solidarity for one another. Sorry to hear your infection might still be around and your fatigue hasn't let up. Sending hugs, love.
Thanks.
I'm so exhausted because of my thyroxine issues right now. It's making it hard to get on and deal with my benefit appeal and the dignitas stuff, but I'm managing to do at least a little something towards them each day like send an email or fill out a form. other than that I am so tired I keep falling asleep during the day. I'm still trying to get the money together to pay for the doctor's note but apparently the only GP that knows me personally there is on holiday for 2 weeks so I guess there's no point rushing right now anyway. I feel like if I do at least one thing towards these two issues each day then at least some progress will get made, however slowly. And i'm going to need to pay for ID documents but have no money for that either. It's all so overwhelming the only thing I can do is one small thing each day.
For once though, one tiny good thing happened. Recently the neurologist said she wasn't going to prescribe my migraine tablet, rimegapant, any more because my migraine diary shows it isn't working well enough to justify the expense. (Apparently a pack of 8 tablets costs the NHS £125 and I've been getting 2 packs a month. The pharmacist scolded me a few months ago for costing the NHS so much money.) She prescribed a new tablet in it's place, but that was only delivered today so i haven't tried it yet. I've been very, very worried about managing without the rimegapant. Last week I quickly put in a repeat prescription request for my two boxes of rimegapant, hoping I'd be able to get it dispensed before the neurologist's letter arrives telling them not to dispense it any more. Today I received it, and when I opened the prescription bag, not only did it contain rimegapant but weirdly it contained 7 boxes instead of 2. A three and a half month supply instead of a 1 month supply. I can only assume the pharmacist made a mistake but I am keeping them. A small victory at last.
Damn comrade that sounds so exhausting. And to think that the NHS was world renowned at one point lol. Well I guess us Americans will have a new horrific round of medical austerity to put up with soon 
My understanding is Americans have been lobbying British politicians to gradually chip away at and dismantle the NHS. They want us to have private healthcare so they can sell healthcare to us. Those of us who rely on the NHS are just collateral damage for America to make bank.
Oh wow I didn't know that. I was actually referring to the new Medicaid cuts coming soon!
That is good you got extra meds! Are the new ones she prescribed very similar or no? Using cost as a justification for that is so stupidly evil.
And honestly, doing just one little thing a day is more than enough. Hopefully those little things will build up and you'll be able to see something come from it without having to sacrifice too much. You deserve lots of rest and I hope you can find some relief soon. Has the tingling subsided at all?
The new ones are a preventative and not used to get rid of a migraine when it happens. I don't think I'm going to try them as they have a lot of side effects and I can't use the rimegapant with them (they aren't safe to mix apparently), I'll have no acute treatment for when a migraine happens. The tingling comes and goes. Right now I'm just mostly exhausted from the lowered thyroid dose. I'm struggling to stay awake or do anything.
pharmacist scolded me a few months ago for costing the NHS so much money
Punch the pharmacist square in the mouth. What the hell. I would have flipped my lid had that happened in m general vicinity. The police would have had to drag me away i would have screamed that much in their face.
That is a small step from calling you a useless eater to your face.
I already know 99% of the British population considers me a useless eater. Why they won't just put me out of my misery I do not know.
duplicate post
Insight into non-anglo European med school for those interested: When you are learning anatomy you always have to use the Latin names, it is considered an error to use any other language name... Except for the articulatio zygapophysiales because no one can spell it. That is literally a rule.