[-] Myrhial@discuss.online 4 points 10 months ago

I feel that autism also belongs in that list, due to the different presentation in women, and the underdiagnosis because of masking. Adhd/autism pairing also happens. If a person then already doesn't have trauma, they risk encountering it. Ofc I also very much agree bio markers like thyroid must be investigated.

[-] Myrhial@discuss.online 15 points 11 months ago

My partner was admitted to the hospital when they couldn't inflate his collapsed lung, as it had a hole in it. They put him on a machine that uses negative pressure to keep the lung shaped as it should be. Normally the hole should close but it wasn't. Ended up with surgery but the problem remained. They were coming up with increasingly outlandish theories as to why it wasn't healing, even going so far as to test him for tuberculosis, and listing him as false negative for covid. They also denied him adequate pain management, until one nurse noticed and gave him ibuprofen to go with paracetamol. This was all when the covid vaccine was only just out so I had to sit by helplessly while I'm increasingly realising the level of care he is receiving doesn't match my expectations. But he's never even been in a hospital and self advocacy is not something he's learned.

Eventually they transfer him to a larger hospital. The doctor there doesn't want to talk straight but between the lines you get the message that he feels the case was entirely mismanaged. They immediately lower the reverse pressure. Hold off on further surgery. Within days healing begins. A week later the lung is healed. It's a miracle...

Anyway, we looked into legal options but there was a lack of proof. The original doctor followed procedure. Yet I'm 100% convinced that because my partner smokes, has bad teeth and looks like a metalhead, there was prejudice at play. I can't know for sure but I feel like the original doctor blamed my partner and figured she'd have to scare him straight. That didn't help of course, he resumed smoking and he's unwilling to seek help because of this experience. I'm honestly shocked at how this could happen, but as time goes on I've seen in other situations how people immediately conclude a person is lower class and thus must be treated differently. If you do one thing for yourself, look into self advocacy. Especially when it comes to medical stuff. My own level of care started to go up when I began to have a conversation with health professionals, outlining my experience and asking many questions. But I'm a middle class woman with fairly conventional looks, so there is a whole level of prejudice I immediately don't face.

[-] Myrhial@discuss.online 9 points 11 months ago

I'm here and very much in favour of scaling down versus having the money run dry. As others have stated I prefer this small instance because it allows for freedom. I can perfectly block an instance if I don't like it, I don't need it decided for me due to defederation, that's the opposite of freedom. Do appreciate your efforts to keep the very worst out.

[-] Myrhial@discuss.online 5 points 1 year ago

I immediately angrility opened the comments to respond. I think it's just a side effect of working in this field. I have to be completely literal to the computer so in communication I prefer the same style. I will argue with people on the use of ambiguous language. More so if they are analysts. I can understand the business doesn't always fully grasp the concept but if you give me a functional analysis it best be 100% clear. And yes, I've been tested for autism, it certainly flagged up as a possible trait, but it's hard to know if this hasn't just become an ingrained preference. Sure does help me when communicating with neurodivergent people, and I've heard from several neurotypical people as well that they actually appreciate the clarity!

[-] Myrhial@discuss.online 6 points 1 year ago

We'll need to ensure that this bias against female (and also male) patients isn't adopted by the AI. We're already not properly testing medicine on both sexes. Medical textbooks often list stuff as more or less common in one sexe. This is entirely possible but if the data isn't properly screened we're just moving the problem. Data can exist and be wrong for many reasons. We should address that urgently. It is bad for everyone. I think it is plausible an AI could have reached the same conclusion here because of all the mental health problems considered far more common in women. Did anyone ever even check where the source of that data is? Because some stuff really hasn't been rechecked in the last 50 years I'm sure.

[-] Myrhial@discuss.online 14 points 1 year ago

2 mandatory office days even for consultants. If you want to be at the office, fine. But don't make everyone be because of some so-called fairness. Catering to some imaginary average person isn't fair, it's hurting everyone a little or a lot. Alas since I'm working via an agency, I got to follow client directives. Luckily I have good rapport with both my agency and my project team lead so I can kinda toe the line.

Also the inability or rather unwillingness of my fellow devs to follow protocol. Ticket not approved by business? You don't touch it. Yet the geniuses I work with went total yolo mode on a project I'm not on. So I wasn't there to remind them and now they're upset they got told off they spent a week on tickets that they were asked to discuss with the business. And that they aren't getting praise for their efficiency. It's government work, not your hobby project. That's a week of budget spent on work they may need to reverse because they didn't even put it on a branch. Maybe when they hear it from higher up they'll listen because I really get the impression when it comes from me it is seen as my personal opinion. No, I just figured out early how the office politics work and play the game I'm paid for. I voice my opinion plenty but here it actually aligns with the organisation expectations.

[-] Myrhial@discuss.online 2 points 1 year ago

She is absolutely beautiful. And full of tortitude I bet.

[-] Myrhial@discuss.online 6 points 1 year ago

Sugar is antibacterial, hence why honey can stay good like forever. It's a cheap way to increase shelf life that also makes people really like the food because we evolutionary seek that stuff out. It's not right though. We work long hours so convenient foods should allow us to buy back some time. But when they're all like this, you end up either having to do it yourself or risk your health. There should absolutely be limits. But with food costs as they are, who is going to fight for that? The alternatives are more expensive, or you reduce shelf life. It's much better regulated here in the EU but we too are still not there, obesity is still on the rise.

[-] Myrhial@discuss.online 3 points 1 year ago

Is it possible for discuss.online to have a reference list somewhere of dead/offline communities? If someone tries to like a post on them, or comments on them, could the user receive a warning that this won't be sent through? Ideally, could there be some indicator on each post + the main page of the community that this community is on a dead instance? Always nicer to have that before someone spends an hour crafting a really good reply not knowing it won't be going anywhere.

[-] Myrhial@discuss.online 4 points 1 year ago

I think the current defaults are fine. I only ever use dark mode but some people use both. Respecting an existing preference is the way to go imo.

Compact is a preference, it can feel very cramped but some people have strong feelings about utilising screen space (honestly some non compact stuff is really silly, so I get it).

Vaporwave is neat if you like it but not generic enough for a default.

I think there is a good balance in the number of choices. I wouldn't add to it unless it's something distinct. I honestly wouldn't put time into making a site theme. You could do just a colour scheme but full themes are hard. I say this as a web developer based on my own experience. Also, from that, I've found that if users are happy, you're doing a really good job. Because if something is wrong or feels off you'll hear it fast.

[-] Myrhial@discuss.online 4 points 1 year ago

When I started my career and I worked at small companies, I figured they just didn't know any better. Now I'm further along in my career I have come to realize that really big companies (as well as government agencies) have the exact same problems except on a much larger scale.

[-] Myrhial@discuss.online 3 points 1 year ago

If I have understood it correctly then A should only get content from B because they are directly linked. Content from C will display on B (via 'all') but will not be sent over from C. Else A would never be able to block C.

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Myrhial

joined 1 year ago