this post was submitted on 13 Dec 2025
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for healthy people to share their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

  6. Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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Source: ace-disgrace-on-the-case on tumblr
There’s something so uniquely terrifying about memory issues. I feel like my self is slipping away from me.
ace-disgrace-on-the-case - Here’s the thing I feel like a lot of folks don’t get: I’m not trying to forget what you said. Honestly, I really tried not to. I can’t control what I do and don’t remember—forgetting things just happens. It’s annoying for you, I know, but for me it’s distressing as hell and when you make a big deal out of it rather than just reminding me you make me feel ashamed. I’ll remember that, at least.
It costs you nothing to be kind to people with memory problems. Please. It’s scary enough without people treating memory lapses as a personal failing.

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[–] tetris11@feddit.uk 15 points 1 week ago* (last edited 1 week ago) (1 children)

If someone says to me "tell me about your breakfast yesterday" my mind is blank and I will simply shrug.

If someone asks me "how were your pancakes yesterday morning?" I will reply "pretty good, could have used more butter and a pinch of salt."

Me not bringing up topics isn't some Machievellian plot of mine to hoard data; I simply cannot easily recall events unless prompted so by others dropping me hints.

There is information in there *gestures at brain* but you have to tease it out with outside stimulus.

I have todo notes everywhere, and my desktop is highly deterministic in window placement to ease the burden of my mind recalling the multitude of things needed for me to work and function.

It's not personal that I don't recall every family holiday event, my mind just simply doesnt work that way

[–] shalafi@lemmy.world 2 points 1 week ago

That exact example is perfectly normal. If your really need to remember a thing, see my comment here on mnemonics. It's like voodoo!