this post was submitted on 14 Dec 2025
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Autism
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This has happened to me in the worst possible way not long ago:
I got involved in a car crash (ugly thing, a truck hit me while I was in my car stopped in a traffic jam and the asshole was looking at his phone so he didn't see the cars in front of him) and ended in the hospital.
On thursday morning, they told me that they would send me to OR to fix my broken vertebra at 16.00. At 20.00 I was still waiting and nobody had given me a reason. At 21.00 they finally decided (after I got angry) to tell me that I wasn't going to OR due to an unexpected emergency. I'd be having the surgery instead early in the next morning.
At 11.00 of that next day I snapped because I was still waiting without any information at all and couldn't hold it anymore so I started yelling. They knew (I told them) that I was autistic. They decided to ignore my constant request for even the slightest info to make the wait more bearable, I ended up yelling and I was told that I was acting childish.
I went to OR at 14.00 that day.
Worst time ever I've spent in a hospital.
that's got nothing to do with being autistic; that's just insanely rude!
yelling is absolutely warranted in that situation.
seriously fuck those people.
you're already in a state of stress due to having major surgery ahead of you. unnecessarily withholding information, for absolutely no reason, would stress out anyone, regardless of wether they're neurotypical or not.
fuck that bullshit.
Sadly, this is consistent with my experience with hospitals. The schedules are constantly in flux and no one bothers to tell the patients/advocates. It really sucks and seems unnecessary. Sorry that happened to you.
Thats the worst thing! If they just said THAT then we have the data to process!
Instead we're left with the impression there is a static arranged schedule in place but it's being withheld from us
What country? I experienced something similar, with the Danish healthcare system. I had to get my arm operated on, so I was scheduled to being operated on at 8 am, but due to some accidents happening on that day, the people from the accidents got moved ahead of me, as their lives were in danger. So I got operated on at 5 pm. But my case was nowhere near as frustrating as what yours sound like - the hospital personnel communicated transparently about my deprioritization to me, and I only had to wait 7 more hours than expected.
Italy. I understand about deprioritization, I really do. I don't understand the lack of information.
Nope, that's just awful with the lack of communication