this post was submitted on 13 Dec 2025
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for healthy people to share their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

  6. Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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Source: ace-disgrace-on-the-case on tumblr
There’s something so uniquely terrifying about memory issues. I feel like my self is slipping away from me.
ace-disgrace-on-the-case - Here’s the thing I feel like a lot of folks don’t get: I’m not trying to forget what you said. Honestly, I really tried not to. I can’t control what I do and don’t remember—forgetting things just happens. It’s annoying for you, I know, but for me it’s distressing as hell and when you make a big deal out of it rather than just reminding me you make me feel ashamed. I’ll remember that, at least.
It costs you nothing to be kind to people with memory problems. Please. It’s scary enough without people treating memory lapses as a personal failing.

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[–] HurricaneLiz@lemmy.world 3 points 1 week ago

I'm laughing bc I've been there on the other side 😂 I have organic brain damage in memory and focus areas, and I think finally after two years my partner realizes I literally don't remember conversations word for word, just the feeling and tone, then the info gets sucked up into my subconscious to be spit back out at occasionally the right times. He asks me to repeat back what I just said and I can't.

Thank you for making the effort to not be an asshole about it, your friend appreciates it more than you know.