this post was submitted on 13 Dec 2025
200 points (96.7% liked)

Chronic Illness

579 readers
2 users here now

A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for healthy people to share their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

  6. Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 1 year ago
MODERATORS
 

Alt Text:

Source: ace-disgrace-on-the-case on tumblr
There’s something so uniquely terrifying about memory issues. I feel like my self is slipping away from me.
ace-disgrace-on-the-case - Here’s the thing I feel like a lot of folks don’t get: I’m not trying to forget what you said. Honestly, I really tried not to. I can’t control what I do and don’t remember—forgetting things just happens. It’s annoying for you, I know, but for me it’s distressing as hell and when you make a big deal out of it rather than just reminding me you make me feel ashamed. I’ll remember that, at least.
It costs you nothing to be kind to people with memory problems. Please. It’s scary enough without people treating memory lapses as a personal failing.

you are viewing a single comment's thread
view the rest of the comments
[–] Jarix@lemmy.world 2 points 1 week ago* (last edited 1 week ago)

Seriously fuck off. I'm so sick of you people saying it's so easy. It's really not. Yeah let's just try to remember some completely bizarre convoluted goldbergian thing as a crutch to remember something simple, like take the clothes out of the dryer.

This completely bullshit theory dores not help a god damned bit.

You are effectively telling someone who can't walk that walking is easy just go run a marathon....

So fucking brain-dead and insulting. Sorry for the rant but I'm really really tired of people like you completely dismissing what others are experiencing just because YOU find it easy. So sick of this advice I'm sorry but you just make me angry by being so shitty

It's so frustrating because we fucking hate how difficult it makes our lives, at least me and others I've known who seen too have the same thing