disabled
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.
Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Follow the Rules:
- This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
- Follow the principles of disability justice, as outlined in the link above.
- Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
- No COVID minimization.
- Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
- If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
- Please CW and spoiler tag discussions of ableism.
- When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
- Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
- Follow the Hexbear Code of Conduct.
Let's kick back and have fun!
As of December 2025, there is a Matrix Chat Room that adheres to the same rules as the community. If you want to join, it is an invite only server. Just knock to join. Should you have trouble with the link, you can contact the mods for help: https://matrix.to/#/#Hexbear_Disabled_and_ND:matrix.org
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ME/CFS + Long Covid is so terrible, I wouldn't want to inflict it upon anyone. I wish everyone wore masks
Did they do any tests for anything else before diagnosing you with ME? It's just they blamed my exhaustion on ME for ages but it turned out to be thyroid cancer. Not saying that you've got that, it's just whenever I hear a diagnosis of ME now I always think a lazy doctor just hasn't bothered to test this patient for other things.
No doctor has officially diagnosed it. I keep being told to exercise and to sleep less by every medical professional I saw which both make everything worse. My last doctor told me "everyone is tired" and that she's also in pain lol.
My only known covid infection has left me housebound and made all my chronic health issues worse, to a point where I can't ignore them or push through anymore. This was about two years ago.
I do remember getting thyroid tests done due to fatigue and weakness (I think these were blood tests tho), but those came back clear just like every other test I was put through the past six years.
I've basically checked out of the medical system, I've been imparted so much trauma and got basically nothing substantive in return. So if I have cancer it's unlikely it will be treated. I fucking hate doctors so much.
I understand how you feel. I would check out of the medical system too, if it weren't for the fact that I need thyroxine to stay alive and I need medical support notes for benefit claims.