Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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Before my ADHD diagnosis I went crazy when I forgot something and someone asked me "why?" Well, actually I still do but at least I have an explanation.
what do you mean "why"? do people forget on purpose? I know it was important, it was also important to me.
Knowing why has been a huge thing for me. It really helps to avoid spiralling into internalised ableism. It's still something I struggle with, and I imagine I'll never be free of having to work at not beating myself up, but I've found that it's a skill.
And this isn't just useful in a self-compassion respect either, but also pragmatically — if I beat myself up for forgetting something, or for not writing something important down etc., it almost always makes the whole problem worse (likely due to the fact that I'm more likely to mess up if I'm stressed, so more stress is not helpful)