Oh look, that thing they said they wouldn't do but everyone who isn't their followers knew they would anyway.
this post was submitted on 12 May 2025
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Anyway.
Just so these dipshits know, I’m already feeling the cuts to Medicare/Medicaid staffing and services.
I live in the US and rely on Medicare because I’m fully disabled, to the point of being homebound.
Apparently the division that deals with remote visiting technology has been cut, so they can’t legally fill my prescriptions anymore unless I physically travel nearly an hour to their office every 3 months to remain eligible, and my doctor can’t legally renew medications that I’ve been on for 20 years. Within a couple of months I’ll have to stop taking all of my long term maintenance meds because I cannot travel to their office.
This will remove all my quality of life and will kill me slowly. I don’t want to die slowly of neglect, so I’ve got a decision to make, and I’m putting it off because I really don’t want to die yet.
I don’t know what to say except I have a name. I’m Lilly Piper. I’m a very good user experience designer, a pretty good writer, and decent friend.
We’re not faceless or nameless. I just want someone to remember that there are names behind these policies.
I’m good at sewing; I make period correct corsets from the 1800s and before (proof and more proof).
I’m actually great at sewing. I do embroidery and am a great listener. I’m also a good writer and editor. I didn’t need to die like this, but I won’t be homeless again, and I won’t beg in the streets for medicine. I just won’t.
e: links
i don't want you to die
Thanks. I appreciate that.
I’m not just talking about myself, but others like me. I’m Lilly Piper, but there are others like me. You can try to save all of us, and I would greatly appreciate your efforts.
I’d like to say I don’t understand what you’re going through.
I’m a 3x attempt survivor, disabled, and terrified. I’m on SSDI, Medicare/Medicaid, and in HUD housing. My situation is not the same but I see you.
I wish there was more I could offer, but you are not alone.
I’m sorry. I wish you didn’t have to go through this. You don’t deserve that.
It's really disgusting how these self proclaimed Christians are so eager to discard the needy to give to the ultra wealthy.
There are still American out there are trying to fight to help disabled Americans like you and everyone else to be able to live a dignified life.
Hang in there.
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This must be terrifying. I disagree with this new requirement to appear in person every few months for reasons just like this, and I'd like to share cases like yours when I talk to Trump voters. Would you be willing to share the condition that keeps you homebound and prevents you from traveling in person?
I’m happy to share my story with anyone.
I have a combination of rheumatological and genetic issues, including RA, Sjögren’s, Ehlers Danlos, severe osteoporosis, and a couple of related issues that have caused severe GI and heart issues. I can’t digest fruits or vegetables (they come out looking exactly how they went in) so my diet is severely limited, and I have seizures.
The drugs they’re saying I can’t have anymore include hydroxychloroquine, pilocarpine, prolia, and a few drugs meant to make my life more livable (tizanadin, gabapentin, mirtazapine, and ondansetron).
e: I can’t travel because of the seizures and that being out and about exacerbates my heart condition (SVT and periodic sinus arrest – I have a loop monitor).
I don’t take any opioids or anything like that, only things to keep GI cramps in check so I can at least eat a bit, plus metoprolol er and more paracetamol than is safe, because nobody is willing to even attempt to manage my pain at this point. I’m better at that through means that won’t ruin me physically or psychologically since I’ve had to for my entire life, since I was too small to have choices.
e2: Let me know if you want to know anything else. (edited to be a bit more specific)
I'm really sorry you're going through that. Trump and co have a LOT to answer for. I wish the best for you, Lilly <3
Thank you. There are a LOT of people like me, and many of them are children.
I want you to know me because people are more likely to fight for friends rather than strangers. Please understand that I am trying to manipulate you, and I’m really hoping you’ll manipulate others this same way. A lot of people are about to die, and some are already dying.
Please find and share their names and stories, and get others to do the same.
We need to be honest with each other.
We are witnessing murder.
I want you to know that I see you. I regret that we don't live anywhere near each other.
In my youth, I sewed my historical recreation garb (poorly). While I can't program, or do UX, I have worked with folks that did that while I managed the server side of things. And I have some experience in visual art.
I am also a decent listener. I'd be happy to listen to whatever you want to talk about. DM me?
@LillyPip @inclementimmigrant This is fucking insane, it's 2025, but these assholes want to take it back to like the 1900s for no reason at all.
IDK what else to say other than this admin needs to be stopped, and it has to happen now.
Thanks for sharing this with us. If my friend was in similar circumstances, I would tell them to read this de-paywalled 404 Media article with a doctor and lawyer next to them, to do what the doctor and lawyer say and comply with all laws and best practices and sensible precautions, and that it wasn’t medical or legal advice and neither is this Lemmy post.
Also, corsetry kicks ass and your work is gorgeous. My SO found creators like Abby Cox, Bernadette Banner, and Nicole Rudolph during 2020 and it’s been an absolutely mesmerizing rabbit hole to fall into even for a cishet fella well outside the key demographics. Although, unisex medical compression support garments are more relevant to me lately; is that an angle that drew you to them with EDS and everything?
I’m glad there’s a gamepad in that picture too. What you’ve shared speaks to a life lived very well in spite of health and circumstance.
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It’s not death panels, it’s the market telling you to die
Yay freedom!
Keep an eye on RFK Jr. though. He seems like the death-panel eugenicist type.
He’s already appointed his first eugenicist. David Geier is who RFK is having conduct the ‘study’ on Autism. He and his father previously experimented on autistic children in his basement by giving them Lupron injections, which cause chemical castration. He was prosecuted in Maryland for practicing medicine without a license, and his father had his medical license revoked in the process.
RFK said he was going to identify and eliminate the cause of autism. The cause of autism is DNA.
I thought this was hyperbole, but holy shit, David Geier is a horrible person. His dad was equally a piece of shit.
https://en.m.wikipedia.org/wiki/Mark_Geier
Further proof that the US is never going to fully recover from this insanity.
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at least $880 billion in cuts largely to Medicaid to help cover the cost of $4.5 trillion in tax breaks.
Don’t forget the purpose. They’re not cutting spending to “balance the budget.” It’s to pay for a fraction of the tax cuts they’re giving to the parasite class.
I think from now on we should only use the term "parasite class" when talking about the elites, the 1%, the billionaires, the wealthy, the rich, the landlords. Make it a habit, maybe even trendy. Parasite class. I like it.
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the tax cuts in 2017, saved the billionaires around 1.7-2.4trillion, this is double that. plus the continuing pillaging by trump.
How conveniently timed, right after Trump's EO to supposedly reduce medicine costs. Definitely no distractions or collusion there.
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“Savings like these allow us to use this bill to renew the Trump tax cuts and keep Republicans’ promise to hardworking middle-class families,” said Rep. Brett Guthrie of Kentucky, the GOP chairman of the Energy and Commerce Committee, which handles health care spending.
How the fuck are tax cuts for the wealthy gonna help the nearly nonexistent middle class?
republicans think the middle class starts at 100 million dollars
Because Republicans always think they're are just on the cusp of becoming a millionaire.
They're trying to kill as many people as possible, What disgusting human beings.
Why can't this be stopped? I don't understand. They're dismantling the federal government and destroying America piece by piece.
keep in mind He's already killed maybe millions of people during COVID.
Thump May I go down your history as one of the biggest Butchers in history.
This can be stopped but the GOP is unwilling to do the legal process to stop him
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Remember that time conservatives said they needed guns to defend themselves from a tyrannical government?
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Susan Collins and Chuck Schumer are very concerned.
I heard Jefferies is staging a sit-in on May 25th as to not inconvenience anyone and calling for bipartisanship to fight this bill.
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https://www.nbcnews.com/id/wbna11237564 Bush Jr did this 20 years ago and got so shellacked by the constituency that (coupled with the whole middle east invasion that accomplished nothing and killed a few people) made it so republicans and conservatives dare not refer to him ever again because of how toxic he is
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I am Jack's complete lack of surprise.
And of course the idiots who voted for Trump will be the ones most adversely affected by this, yet still somehow blame the Dems and liberals
“Hey sick Americans who rely on America to survive- fuck you!” - republicanazis
Programs like SNAP are up next. The time to eating the rich is nigh upon us.
The party of taking things away.
It applies to literally anything they champion.
Yo we're fucked. I hope there's light at the end of the tunnel, like assisted unlivable.
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100s of years ago, your ancestors boarded boats to come to America for a better life.
Are you so indolent and pampered that you'll whinge and complain in America until you die?
Leave, GI, your country is abandoning you. Take your skills and education and emigrate to a country that treats you with respect, GI.
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