This is something that I’ve been struggling with for several years and I just can’t do it any more. The UK makes it really hard to get disability benefits, despite what they say in the media. Many people here may be familiar with my situation, how I spent over a year and a half going through appeal (and this is the second time!) after being given zero points on my assessment despite being in active cancer treatment, being in recovery from a stroke, becoming partially sighted and unable to walk properly, dress myself, etc due to the stroke, as well as other issues such as crippling, blinding migraines and chronic infected foot ulcers so bad I go through periods of being unable to even wear shoes for weeks when they flare up/recur. My cancer treatment has given me so many food intolerances and allergies that there are only four foods I can eat without side effects and this has caused such severe nutritional deficiencies that I’m losing the use of my feet and the NHS dietician says there is nothing they can do. All this and I still got zero points (ie being judged perfectly fit and in need of no help).
One of the excuses for giving me zero points the first time was that I hadn’t yet started rehabilitation after my stroke. It was because the NHS waiting list is so long, I had to wait to start treatment (which has obviously left me with untreatable issues as you should get started on the rehabilitation quickly). The benefit assessor said in the report that, because I was not having rehabilitation there was clearly nothing wrong with me, no issues from the stroke. Ignoring the fact that I was on the waiting list. I did challenge this nonsense at appeal, and eventually won.
As evidence of your issues, the DWP require letters from your medical providers which have to be dated within 6 months. They won’t accept older ones. All of this means that patients who claim disability need to continue to receive treatment for their issues, whether they want it or not, whether it is benefiting them or not, even whether it’s making your issues worse (for example with terrible side effects that are worse than the original condition).
This is why I’ve been continuing with useless treatment that isn’t benefitting me and is stressing me out, like physiotherapy (it’s become clear to me and the physios that I was left on the waiting list too long and my issues won’t go away now, the physios say after this current course of treatment they are discharging me as there is nothing more they can do) and going to the eye clinic for all-day long appointments just to continually check on my vision loss which is exhausting and does nothing to benefit me, and the stroke clinic which is useless. I keep going to all this rubbish, which is exhausting and expensive in terms of transport, even though it’s not benefitting me and is wasting NHS appointments just because I know at my next reassessment they will use it as an excuse to stop my benefits if I’m not. They’ll say “You aren’t in treatment for this issue therefore there is nothing wrong with you - zero points.” Same thing if you choose not to take your prescribed meds any more, they’ll say that means there is nothing wrong with you.
It’s so stupid and fascist. You literally aren’t allowed to accept your medical condition and just choose not to fight it any more, otherwise your only source of income will be withdrawn. You have to keep taking medications that make you violently ill, and treatments that cause pain and debilitation (which physio is, for me) with no hope of them actually working, just because you’ll be impoverished to death otherwise.
This means disability claimants don’t have free choice about whether to receive medical treatment or not. How is this not discrimination against the disabled?
I just can’t keep up with it any more. I will keep going to some treatments that help a bit, but I can’t keep doing these endless, multiple times a week, stressful appointments and treatments indefinitely. I can’t keep this up for years on end just because the DWP will stop my benefits otherwise.